That's amazing! My cane is pink and my walker is purple and I'm so happy I get to chose. I'm glad you feel powerful with physical therapy, cause you should! And plushies are the absolute best \ (•◡•) /
I'm trying to create amore positive and content place for disabled and chronically ill people. I see so many negative posts about being chronically and they can really put me down. I wanna change that
I'd love to ask the question, what are you grateful for?
Now, I know this can be SO hard to answer especially when you're chronically ill. But I really want you to try and think of at least one thing. It could be something really small. Or even a list!
I'll go first: I'm grateful for my ability to create art, my mobility aids, and my chosen family.
YOUR TURN!
I'm not at all saying people can't vent or complain about being disabled and chronically ill. I do it all the time. What we go through is beyond difficult
But I'm on my phone a lot cause I don't have the spoons for anything else. I'm always seeing posts about how horrible it is to be chronically ill. It's constant reminder. Its like picking at a wound never meant to heal in the first place. Sometimes I see more positive posts, but they are few and far between. I should make an effort to post some more positive content.
Me: Before getting really sick I could easily go to bed around 9:30. Can I still do that? (´ . .̫ . `)
Body: Oh god no! You're staying up till 1 am without choice.
Me: Well at least I can sleep in-
Body: WAKE THE FUCK UP ITS 5 AM AND WE JUST HAD A NIGHTMARE
┻━┻ ︵ヽ(`Д´)ノ︵ ┻━┻
And if you can believe it, I am e-begging once again. bills are all paid but we have no money to pay for food until my food stamps come in two weeks from now. anything helps and anything means the world.
venmo/paypal/cashapp : snowycrone
CHECK THE DATE GUYS!!!! TODAY IS THE DAY!!!!
Call me a gymnast cause I am jumping through hoops trying to get a diagnosis
Thanks so much for your feedback! And that sounds really calming :) I encourage you to do it more often. In my settings, I'm able to put my phone on "Down Time" which allows access to only a few apps. I'm not sure what phone you have (I have Apple), but you could try that!
I did what I like to call a "digital detox" by limiting 90% of the apps I could use on my phone, especially social media. I do this because I find so much negativity in the community. Trust me when I say I know being chronically is hard. But there is no reason any of us need a 24/7 reminder of it.
I also find it difficult when I'm stuck at home for a good majority of my days, with no work, it's hard to keep myseld entertained all day. I end up relying on my phone and I get incredibly sad in the process.
As some of you may know if you watch my YouTube, I was off social media for 7 months. I found it beneficial. While I'm ready to be back on social media, I needed a break
So I only used my phone to film my journey, listened, to music, and text two people. My time spent on my phone was half of what it usually was (really just using the camera app.)
Would you be interested in me uploading to my YouTube channel my journey of a digital detox while living with a chronic illness? Should I do this more often? Would you consider doing this?
Just had to pay a thousand dollars of medical debt…
I spent a third of my savings, I can’t get a job because of my disability. I haven’t gotten a diagnosis. And if i want a diagnosis I gotta keep fucking pay off medical debt. And no getting paid disability till I get a diagnosis. THE AMERICAN HEALTH CARE IS ABSOLUTELY FUCKED
People act like we CHOSE to be disabled. That we CHOSE to not be able to hold a job, or not be able to take care of ourselves.
All I gotta say at this point is
For the love of god I am CHUGGING electrolytes why do I feel horrible still